In 1978 a group of families, concerned about the lack of assistance for their children, formed the Muscular Dystrophy Support Group. Without clinical or public recognition of the disorders the group began the challenging process of community education and fundraising while continuing to provide support to each other.
Muscular Dystrophy Queensland today
The Muscular Dystrophy Association of Queensland Inc. today is building on the hard work of these early volunteers. The Association is incorporated and is recognised as a credible and accountable provider of services to clients with MD and their families.
Muscular Dystrophy Queensland works closer than ever with other service providers, Queensland Health, Disability Services and other government agencies to ensure that people with MD and their carers are aware of, and have access to, preventative health education, services, and community support.
All Queenslanders living with muscular dystrophy and other neuromuscular conditions are empowered to make the most of opportunities, maximise their potential and live fulfilling lives.
Muscular Dystrophy Queensland aims to build on our reputation as the only state based organisation dedicated to supporting those living with muscular dystrophy and other neuromuscular conditions from diagnosis to end of life by offering:
- Trustworthy and accurate information to all stakeholders re management, available services, possible treatments, and research advancements
- Direct and individualized support and services
- Assistance with planning for the future and future needs
- Immediate response at times of crises
- Peer support within the client community, to reduce isolation and encourage lifelong friendships
- Advocacy on their behalf
- Partnerships with other organisations for advocacy
- Support for evidence based, emerging research.
Muscular Dystrophy Queensland is committed to a strong and positive culture, change inspired by innovation and response to need, and to developing and growing robust income streams to provide for and enhance our services to our clients, their families and stakeholders.
Muscular Dystrophy Queensland is funded through its own fundraising programs and sponsorship with a small percentage from government sources. There are over 4500 people in Queensland with some form of neuromuscular condition, although not all are MD Queensland members or actively involved. Support is provided to anyone free of charge and people are not excluded from receiving support on the basis of their financial status.
MD Queensland relies heavily on fundraising to provide financial assistance to our clients, and families of clients, in need or crisis. The generosity of people and the willingness of volunteers to give up their time for the cause of MD, are the backbone of our association, and without their support we could not provide services that assist people living with MD to face the many challenges associated with the disorder.