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Informed Consent

Muscular Dystrophy Queensland is committed to adopting best practices that support and maximise the client’s clear decision-making, choice and self-direction. Informed consent is necessary for the provision of all MDQ services and is obtained through the completion of MDQ’s Consent Form.

In order to give informed consent, MDQ is responsible for explaining:

  • What the consent relates to
  • Why the consent is required

 Who can give consent?

  • An adult client of MDQ. If you are physically unable to sign a consent form, you can ask an informal representative to sign it for you. We will ask for their details and a declaration that the form has been signed and submitted in consultation with you.
  • The legal guardian of an adult client
  • For children, MDQ recognises the rights of the parents/guardians to give consent, however also understands that the Privacy Act sets no minimum age at which an individual can make informed decisions regarding his or her personal information. MDQ acknowledges that the Guidelines to the National Privacy Principles suggest that each case must be considered individually as to when a young person may have the capacity to make a decision on his or her own behalf.

What does MDQ need consent for?

Consent to provide services: MDQ requires your consent before we can provide services. We will explain the services that we offer and any costs involved.

Consent to disclose and collect information: information is disclosed, collected, stored and shared under the Privacy Act and Australian Privacy Principles 2014. In order to provide a service, MDQ must have access to and authorisation to store and share information.

Consent to Communicate with a Guardian/Nominated Representative/Family Member: Under the Australian Privacy Act (1988) MDQ is not entitled to disclose client information to anyone other than a legally recognised guardian, unless we have your permission. If you are over 18 years old and would prefer that we communicate with a family member or other informal representative, you must give your consent and provide details. The MDQ consent form with allow you to nominate 2 people as your nominated representatives.

Consent to video, photography and media: You can choose to provide consent about how any images and digital media can be used. MDQ may wish to use photos, video and media for:

  • assessment, treatment or your NDIS goals
  • educational purposes
  • client publications, marketing, advertising and media (including social media)
  • fundraising publications, marketing, advertising and media (including social media)

You can choose to give consent or decline consent for using video, photography and media and this will not affect your access to services from MDQ.

 How long does consent remain in place?

Your consent form will remain in place for three years unless

  • You turn 18
  • There is a change in your circumstances e.g. you may wish to add or remove a nominated representative
  • You ask for it to be revoked – you have the right to withdraw your consent at any time.