Advocacy for individuals and our community

At Muscular Dystrophy Queensland, we define advocacy as acting on behalf of a client (or our client community) with regard to a sincerely perceived disability and/or health related issue, to promote, protect and defend their welfare, provide a strong, supportive voice and influence positive change.

Advocacy for Individuals

We provide individual advocacy support for our registered clients and where appropriate, their family members, if the issue affects the client.

What are some examples of advocacy for individuals?

Prior to the introduction of the NDIS, MDQ often advocated for the following:

  • Increased funds from the state government to meet an individual’s disability support needs
  • Access to suitable, independent housing for a client
  • Assisting people to address specific issues they may be facing
  • Providing a strong, supportive voice for our clients who are unable to assert their needs themselves. This can be within a family, within an education setting, within a community.

Under the NDIS, these advocacy needs will change, but only slightly. Empowering people to exercise their individual rights and to be included in their local communities will continue to be integral to the services we offer.

Advocacy for our community

We believe that we are Queensland’s only legitimate voice, representing people with muscular dystrophy and similar conditions.

We are committed to raising awareness of the complexity and level of need of the conditions we support, including the fact that most of the conditions are progressive. Our board and senior staff join client services staff in raising awareness of the needs of our community in all of our networks and in conversations and meeting with influential stakeholders.

At this time, Muscular Dystrophy Queensland is also using systemic advocacy to achieve the following results

  • Improved and integrated medical care for Queenslanders with muscular dystrophy and similar conditions
  • A focus on respiratory care.

Points to note

  • We respect people’s needs however this program is funded on an entirely charitable basis and we may not have capacity to be able to advocate on all issues
  • We work with people in a non-discriminatory manner
  • We respects privacy and confidentiality
  • We work within our Vision and Mission
  • We adhere to relevant State and National legislation [1]

[1] MDQ acknowledges and thanks MDWA for sharing some of their content used in this page.