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Advocacy for individuals and our community

At Muscular Dystrophy Queensland, we define advocacy as acting on behalf of a client (or our client community) with regard to a sincerely perceived disability and/or health related issue, to promote, protect and defend their welfare, provide a strong, supportive voice and influence positive change.

Advocacy for Individuals

We provide individual advocacy support for our registered clients and where appropriate, their family members, if the issue affects the client.

How can I obtain some advocacy support for issues which are important to me?

Because of the generosity of our donors, Muscular Dystrophy Queensland (MDQ) can independently advocate on behalf of all of our clients or can assist you in a referral to an organisation which specialises in advocacy.

If you are a person with muscular dystrophy or similar condition (or a family member) and you need support, just call our Helpline  1800 676 364 or email info@mdqld.org.au 

 What are some of the issues for which people need advocacy support?

  •  Getting a fair deal in my NDIS Plan
  • Being a more independent decision maker within my family
  • My condition not being understood at my school

Under the NDIS, these advocacy needs will change, but having support to have your voice heard will always be needed. Empowering people to exercise your individual rights and to be included in your local community will continue to be integral to the services we offer.

Advocacy for our community

We believe that we are Queensland’s only legitimate voice, representing people with muscular dystrophy and similar conditions.

We are committed to raising awareness of the complexity and level of need of the conditions we support, including the fact that most of the conditions are progressive. Our board and senior staff join client services staff in raising awareness of the needs of our community in all of our networks and in conversations and meeting with influential stakeholders.

At this time, Muscular Dystrophy Queensland is also using systemic advocacy to achieve the following results

  • Improved and integrated medical care for Queenslanders with muscular dystrophy and similar conditions
  • A focus on respiratory care.

Points to note

  • We respect people’s needs however this program is funded on an entirely charitable basis and we may not have capacity to be able to advocate on all issues
  • We work with people in a non-discriminatory manner
  • We respects privacy and confidentiality
  • We work within our Vision and Mission
  • We adhere to relevant State and National legislation [1]

[1] MDQ acknowledges and thanks MDWA for sharing some of their content used in this page.