MD Qld Teleconference Events

teleconferenceMD Qld are pleased to announce that we are launching a new way of connecting people through  teleconference events.  We plan to host a series of teleconference events for people with MD and neuromuscular conditions throughout the year where a guest speaker will present some information on a particular topic followed by question and discussion time.  We anticipate that each session will last approximately 30 minutes.

Our first series includes two women who would like to share their stories with a focus on how they have maintained their mobility and independence.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                           

“How I Keep My Independence”

11am-11.30am Wednesday 21st April 2010

Carol is a woman in her 50’s who was diagnosed with Polymyositis 15 years ago.  This has resulted in progressive degeneration of her skeletal muscles.  Over the years Carol has worked out creative ways to maintain her mobility and independence that allow her to continue doing the things she loves and deal witheveryday life.  Carol would like to share what she has discovered works for her both in terms of practical solutions and ways to be best supported.  She hopes this will inspire other people to think outside the square when looking for ways to manage the challenges they face in their own experience of MD and other neuromuscular conditions. Carol’s motto is “Move it or lose it”.

“There is hope for a better future”

11am-11.30am Wednesday 28th April 2010

Margaret is 67 years old.  At the age of 45 years the effects of MD became apparent as Margaret had difficulty in climbing stairs and running (Margaret had been a finalist in Qldstate primary school sprint for 3 years).  Margaret has used a number of strategies to maintain the strength of her muscles including exercise, diet, supplements, and physiotherapy.  The regular use of a Kinetic/Tens machine has been a very powerful way for Margaret to exercise muscles.  Over the last 10 years Margaret used a walker around the house and lately uses a wheel chair during outings for safety in crowds.  At this time Margaret estimates that she could probably walk 100 metres with a walker before being exhausted.  Margaret has found that having an interest, like making things to give to ladies who are distressed – like flood victims or people struggling financially keeps her focused. Margaret believes “We have to work with what we can do”.

To join a teleconferencing event you will need to do the following:

Dial free call number 1800 701 193 and enter the code 405882#

We understand that not all people will be available at the same time so we will be recording the presentations and posting the recording on You Tube.  You will be able to find a link to the recording on both our website  and Facebook page (which can be accessed either by clicking on the Facebook link on our website or by searching and adding MD Qld as a friend to your own page).

This will allow people to listen at their own leisure and join discussion topics on Facebook or make contact at another time for a conversation.  For those people who do not have access to the internet we would be happy to provide a recorded copy of the presentations upon request.

We invite any feedback you have on these events with the assurance that this information will be taken into account when planning future events.  We would also like to hear from people interested in presenting a topic for discussion.

 

Please RSVP by the day before the event to give us an indication of how many people we are expecting to join us.

 

Please contact Penny Hamilton from the Client Services team to RSVP or provide feedback, suggestions or information by calling 3607 1800 or free call 1800 676 364 or alternatively email clientservices@mdqld.org.au.