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Useful Contacts

Listed below are some contacts that may be useful to you and your family.   If you require assistance  in accessing the services they provide or other services please contact the Client Services team at our Nundah office.

MD Organisations Australia-Wide

MD associations have been serving people with neuromuscular conditions in Australia for over 50 years, the first established in South Australia on 4th August 1954. Since then associations have been established in the majority of Australia’s States and Territories. Other Muscular Dystrophy associations are:

In the Northern Territory services are provided by MD South Australia.

MD Foundation Australia

Muscular Dystrophy Foundation Australia (MDF Australia) was established in 2005 to increase cooperation among state-based Muscular Dystrophy associations. MDF Australia took a significant step in May 2008 in appointing its first CEO. Inaugural membership of this representative body included New South Wales, Queensland, South Australia and Tasmania. MDF Australia now comprises 6 states and territories, covering more than 2/3 of Australia’s population. Visit their website.

LifeTec Queensland

LifeTec provides a Queensland wide service including information, education, and consultation on how assistive technology can improve your quality of life. For enquiries:
Brisbane: 07 3552 9000 Townsville: 07 4759 5600
Website: www.lifetec.org.au

Commonwealth Respite & Carelink Centres

CRCC help people find care and support to continue living independently in their own homes. They can provide information about community, aged care, disability and other support services. The centres can also help to arrange respite care when carers need a break, including in-home, emergency and other flexible respite options. To contact your local Commonwealth Respite and Carelink Centre:

Freecall (except from mobile phones): 1800 052 222

Carers Queensland (linked to Carers Australia)

Carers Queensland provides counselling, advice, advocacy, education and training throughout Queensland. For enquiries:

Freecall: 1800 242 636
Website: www.carersqld.asn.au

Department of Communities – Disability Services

Government department overseeing all services for people with disabilities in Queensland. By July 2019, this department will be replaced by the National Disability Insurance Agency (NDIA).

For general enquiries:

Phone: 13 QGOV (13 74 68)
Website: www.communities.qld.gov.au

National Disabilty Insurance Agency (NDIA)

This is the Australian government agency which is implementing the National Disability Insurance Scheme (NDIS).

Freecall: 1800 800 110
Website: www.ndis.gov.au

Genetic Alliance Australia

Genetic Alliance Australia (GA-AU) will endeavour to facilitate contact with another family/individual affected by the same, or similar condition. Please contact Genetic Alliance Australia on:

Phone: 02 9295 8359
Website: geneticalliance.org.au

Advocacy Providers in Queensland

The following advocacy organisations provide people with disability with access to effective disability advocacy.

Provider Name:    Independent Advocacy in the Tropics Inc

Phone:                1800 887 688

Website:              www.independentadvocacy.org.au

Service Areas:     Burdekin, Charters Towers,,Flinders, Hinchinbrook, Palm Island,and Townsville

 

Provider Name: People with Disability Australia Inc

Phone:                1800 422 015 (Toll Free)

Website:              www.pwd.org.au

Email:                   pwd@pwd.org.au

Service Areas:     Logan City Region, Sunshine Coast Region, Bundaberg Region, Fraser Coast Region, Mt Isa and Lower Gulf Communities

 

Provider Name:   Queensland Advocacy Inc

Phone:                 1300 130 582

Website:              www.qai.org.au

Service Areas:     Statewide

  

Provider Name:   Rights In Action Inc

Phone:                07 4031 7377

Website:              www.rightsinaction.org

Service Areas:     Cairns, Atherton, Mareeba and Yarrabah

 

 Provider Name:   Speaking Up For You Inc

Phone:                07 3255 1244

Website:              www.sufy.org.au

Service Areas:     Brisbane City and Moreton Bay regions

 

Provider Name:   Children and Young People with Disability Australia (CYDA)

Phone:                1800 222 660

Website:              www.cda.org.au 

Service Areas:    Australia-wide

Other Neuromuscular Organisations

Australian Mitochondrial Disorder Foundation: www.amdf.org.au

Charcot-Marie-Tooth Association of Australia: www.cmt.org.au

FSH Society: www.fshsociety.org

Friedreich’s Ataxia Network Inc: www.fan.asn.au

Myasthenia Gravis Association of Queensland: www.mgaq.org.au

Spinal Muscular Atrophy Australia: www.smaaustralia.org.au

Leukodystrophy Resource & Research Org Inc: leukodystrophyresourceresearch.org

For more information, call Muscular Dystrophy Queensland on 07 3243 9700

The following links may assist for grief, loss and counselling purposes: