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You’re The Voice

You're the Voice
You’re The Voice invites anyone in the neuromuscular community to contribute their stories, ideas, experiences and insights in a collection of videos and recordings giving encouragement, inspiration and hope.

We wanted to create a platform for regular people in the neuromuscular community to share their stories, ideas and conversations about all aspects of living life on their own terms. A place be real and talk about the triumphs as well as the struggles, the insights and the fails, big or small, and how you handled it all.

Your voice can inspire and empower others to live an awesome life. A place to find real stories and ideas on how to handle the hard stuff and try again, and how to create the great stuff in life.

As speaking and listening are often the best form of communication for people living with neuromuscular conditions, the stories and conversations in this collection are video and audio recordings.

Meet our Project Leaders

Doug and Nhon's profile photographs

Nhon (left) is a University student training to be a therapist. Nhon is passionate about public speaking and connecting with others who are dealing with similar questions or struggles as he had. Meet Nhon via his introduction video. 

Doug (right)  is very involved in the theatre, as an actor and a performed playwright. When he’s not working on a play Doug spends his time volunteering, performing weddings as a marriage celebrant, supporting the Penrith Panthers and with his partner Lauren. Meet Doug via his intro video.

Nhon and Doug’s introduction videos are also available in available in podcast format.

The Collection

Watch the entire collection on YouTube, or listen to our podcast collection on SoundCloud

.Doug Robins shares his success and challenges finding a place to live
Finding love and moving out – by Doug.
Watch YouTube
• Listen to SoudCloud podcast
Raymond shares his story - If you don't try, you won't know
If you don’t try, you won’t know – from Raymond.
Watch YouTube
• Listen to SoudCloud podcast
 

Add your story to the collection
Share your story with us.
Hints of creating a YouTube clip
Tips on creating a SoudCloud podcast

Add your story to the collection
Share your story with us.
Hints of creating a YouTube clip
Tips on creating a SoudCloud podcast

Want to add your voice to the project! Here’s what to do …

It’s easy to join us and learn how to be a narrator

Contact our project leaders, Nhon & Doug, who can answer your questions and/or help you get started. Helene Frayne, is also available via email or by calling our office on freecall 1800 676 364.

Other Shared Knowledge

Check out Deb & Doug’s tip sheets for practical advice on doing life with a neuromuscular condition.

PTC LogoThis project has only been possible with the support of the PTC Therapeutics Strive for DMD Awards.