You’re The Voice
You’re The Voice invites anyone in the neuromuscular community to contribute their stories, ideas, experiences and insights in a collection of videos and recordings giving encouragement, inspiration and hope.
We wanted to create a platform for regular people in the neuromuscular community to share their stories, ideas and conversations about all aspects of living life on their own terms. A place be real and talk about the triumphs as well as the struggles, the insights and the fails, big or small, and how you handled it all.
Your voice can inspire and empower others to live an awesome life. A place to find real stories and ideas on how to handle the hard stuff and try again, and how to create the great stuff in life.
As speaking and listening are often the best form of communication for people living with neuromuscular conditions, the stories and conversations in this collection are video and audio recordings.
The Collection
Watch the entire collection on YouTube, or listen to our podcast collection on SoundCloud
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![]() Share your story with us. • Hints of creating a YouTube clip |
Want to add your voice to the project! Here’s what to do …
It’s easy to join us and learn how to be a narrator
Contact our project leaders, Nhon & Doug, who can answer your questions and/or help you get started. Helene Frayne, is also available via email or by calling our office on freecall 1800 676 364.
Other Shared Knowledge
Check out Deb & Doug’s tip sheets for practical advice on doing life with a neuromuscular condition.
This project has only been possible with the support of the PTC Therapeutics Strive for DMD Awards.