You’re The Voice
You’re The Voice invites anyone in the neuromuscular community to contribute their stories, ideas, experiences and insights in a collection of videos and recordings giving encouragement, inspiration and hope.
We wanted to create a platform for regular people in the neuromuscular community to share their stories, ideas and conversations about all aspects of living life on their own terms. A place be real and talk about the triumphs as well as the struggles, the insights and the fails, big or small, and how you handled it all.
Your voice can inspire and empower others to live an awesome life. A place to find real stories and ideas on how to handle the hard stuff and try again, and how to create the great stuff in life.
As speaking and listening are often the best form of communication for people living with neuromuscular conditions, the stories and conversations in this collection are video and audio recordings.
Meet our Project Leaders
Nhon (left) is a University student training to be a therapist. Nhon is passionate about public speaking and connecting with others who are dealing with similar questions or struggles as he had. Meet Nhon via his introduction video.
Doug (right) is very involved in the theatre, as an actor and a performed playwright. When he’s not working on a play Doug spends his time volunteering, performing weddings as a marriage celebrant, supporting the Penrith Panthers and with his partner Lauren. Meet Doug via his intro video.
Nhon and Doug’s introduction videos are also available in available in podcast format.
The Collection
Watch the entire collection on YouTube, or listen to our podcast collection on SoundCloud
. Finding love and moving out – by Doug. • Watch YouTube • Listen to SoudCloud podcast |
 If you don’t try, you won’t know – from Raymond. • Watch YouTube • Listen to SoudCloud podcast |
|
|
 Share your story with us. • Hints of creating a YouTube clip • Tips on creating a SoudCloud podcast |
Want to add your voice to the project! Here’s what to do …
It’s easy to join us and learn how to be a narrator
Contact our project leaders, Nhon & Doug, who can answer your questions and/or help you get started. Helene Frayne, is also available via email or by calling our office on freecall 1800 676 364.
Other Shared Knowledge
Check out Deb & Doug’s tip sheets for practical advice on doing life with a neuromuscular condition.
This project has only been possible with the support of the PTC Therapeutics Strive for DMD Awards.
