Neuromuscular Digital Resource


The Muscular Dystrophy Foundation in partnership with Muscular Dystrophy Queensland, through funding from the Commonwealth, is developing a digital resource for the neuromuscular community. This will be an integrated, accessible and multi-language support system.

What is the Neuromuscular Digital Resource?

The Neuromuscular Digital Resource will essentially be a ‘one stop shop’ for Australians living with a neuromuscular condition, their families and carers to access the latest in medical research, condition information and support services.

The ultimate outcome is for you to be more connected and informed to make decisions about your own personal needs, through integration with specialist and mainstream services and support networks in your local area.

To our knowledge, this is the first resource of its kind to be built in Australia.

We need your help to make it happen! 

In order for the Resource to meet the unique needs of our community, we are asking you to participate in a focus group. The outcomes of these sessions will give a better understanding of what you need and want from the system.

This is your opportunity to have your say about the biggest project in the Muscular Dystrophy Foundation’s history.  

The more people we have participating, the better the end product, so come along and have your opinion heard.

As a participant, you will receive a $50 gift voucher to compensate you for your time.

If you can’t participate in the focus group, you will also be able to provide feedback via an online survey coming soon.

To RSVP for one of the Brisbane focus groups listed below please contact: Ondrea Hornsby at Muscular Dystrophy Queensland by phone 3243 9700 or email by 22 March. Please specify which session you will be attending.

Two sessions:
Wednesday 27 March
Grange Library, 79 Evelyn St, Grange

Thursday 28 March
Fitzgibbon Community Centre, 545 Roghan Road, Fitzgibbon

Refreshments will be provided.

For more information, please see the MDF Information sheet