Living with muscular dystrophy – shared stories from our clients
Muscular Dystrophy Queensland’s clients are a diverse group. Whether it be working towards living independently, inventing new modes of transport, or winning medals at state and national sporting competitions, our clients never stop inspiring us. Here, they share their stories.
We are always looking for new contributions. If you would like to share your story with us, please contact our Communications Coordinator.
Make sure you read our bi-monthly client updates for more stories and news from Muscular Dystrophy Queensland.
Gordon’s journey is one of transition. From living with Mum, to living in a respite accommodation, to living in supported accommodation, and now living independently in his own unit in an area of his choice. This journey began when Gordon’s Mum had a heart attack in 2012 and he was faced with no choice but to go into a respite care situation that lasted for a period of 6 months. Read more.
Tracey has achieved an extraordinary level of success in her chosen sport, 10 metre air rifle target shooting. She talked to us about how the sport helps her to travel around Australia and meet different people and helps others to see past her disability. Q. How did you first get involved in shooting? “I have always had a secret love for guns, big ones or small, anything with fire power. I had only ever shot one rifle in my life before this and loved it. So when Muscular Dystrophy Queensland… Read more.
Max has found his calling in a sport called boccia. He chatted with us about the benefits of being involved in the sport. He’s met many new friends and made some great achievements in a short time. At the time of our interview, Max had been selected to be on the Junior Queensland Boccia Team, to compete at the Boccia Australia Championships in Narabeen, NSW. Q. How did you first get involved in boccia? Muscular Dystrophy Queensland organised a demonstration game in 2012 which I went along to.” Read more.
Josh and his Queensland team mate Bryce Castles represented the Australian power chair football team in Rio, competing in the 2014 Copa Americas tournament, run by the Powerchair Football Confederation of the Americas (PFCA). They played against the USA (the world’s number one team at the time), Canada, Brazil, Argentina, and Uruguay. Australia made the grand final, sadly losing to USA. What an amazing achievement for Josh and Bryce! Josh wants to raise awareness of his sport, so he answered some questions about his journey to Rio. Read more.
Colin told us about his experience of playing competitive lawn bowls. For Colin, who has Facioscapulohumeral Muscular Dystrophy (FSHD), lawn bowls helps him to get some exercise and keep mobile. He believes that it’s a sport that anyone can get involved in. Q. How did you first get involved in lawn bowls? In 1997 I started playing “bare foot bowls” on a Tuesday night at Marlin Coast Bowls Club, Cairns. Read more.
Brendan is an adventurous man who has overcome some of the challenges of MD in a unique way. He explained how he manages to get out and about, see new places, and find the best fishing spots – even if they are a little tricky to get to! “It was just last year when my older brother and I were looking at a way to make access to fishing spots that require a quad bike to reach, such as a place known locally as the Point, a ride of 20kms. So with the help of his railway friends, my older brother built a special chair trailer out of an old Marlin chair to tow behind his quad bike. Read more.
Robert talked to Muscular Dystrophy Queensland caseworker, Maryanne, about his favourite activities and how he keeps busy. Being born in Melbourne, Robert is an AFL fan. Barracking for Collingwood, he often enjoys watching the game with his Mum and Dad, who he lives with. He likes to cook for himself (his favourites are pizza and cupcakes) but regards his Mum as a better cook, particularly when his favourites, Thai food or salmon, are on the menu. Read more.
Gordon is well qualified to talk about ten pin bowling – he’s played for some 20 years! In June 2014, Gordon shared some of the reasons why he loves this sport. Q. How did you first get involved in ten pin bowling? “I first heard of the sport through some friends and simply decided to have a go. Beginning at Redcliffe Bowling Centre I played for 3 years then moved across to play League at Strathpine Hyper Bowl in 1994. I’ve played on most weekends for 20 years and I still enjoy playing just as much now as when I first begun.” Read more.
Tristram is 26 years old, and has Spinal Muscular Atrophy Type 2. He never walked, and was in his first electric wheelchair by the age of four. As a kid, he thought this meant he would never be given the opportunity to play sport. So, when he heard about electric wheelchair sports, he leapt at the chance to get involved. He has now been playing electric wheelchair sports for many years, and has represented Queensland and Australia. Read more.