Story Bridge Lights Up for Muscular Dystrophy

2 March 2015

FOR IMMEDIATE RELEASE

 

Story Bridge Lights Up for Muscular Dystrophy

Brisbane, Queensland

BRISBANE’S STORY BRIDGE will light up the night in flashing red between 2nd and 7th March to raise awareness of muscular dystrophy.

The spectacle will bring attention to the challenges faced by families living with and dying from muscular dystrophy and the services Brisbane based charity, Muscular Dystrophy Queensland offers to support these people.

There are 4,500 Queenslanders living with muscular dystrophy. Each year another 40 receive the devastating diagnosis that they too have the condition which has no cure and little, if any option for treatment.

With the support Muscular Dystrophy Queensland, each month 120 people receive guidance and support from a specialist caseworker. Every day thousands of Queenslanders sit in comfortable wheelchairs, modified to meet their needs. Each morning more than 200 people wake up independently and safely in specialised hi-lo adjustable electric beds, provided and maintained by the organisation. But more must be done. Without a cure and with no treatment options, muscular dystrophy will continue its cruel progression, taking away the most basic abilities from everyday Australians – Mums and Dads, brothers and sisters.

The charity will be raising funds throughout March through their annual red bow appeal. On Friday March 6th Year 11 Students from All Hallows School will descend on Brisbane’s CBD to sell red bows and round up donations for Muscular Dystrophy Queensland. Supporters from all over Queensland are ‘hosting morning teas for muscular dystrophy’ in their homes and workplaces – each host striving to raise greater awareness of this rare condition, as well as funds, so essential to support services for today and bring hope for tomorrow in the search for a cure.

Muscular Dystrophy Queensland’s CEO, Helene Frayne said, “Muscular Dystrophy Queensland is not just there for people diagnosed with this devastating, progressive disease, we support families and carers who also struggle with its effects on the whole family unit. The red bow appeal which runs throughout March, is our most important fundraiser of the year. Families throughout the State urgently need your support.”

Contacts:

Celeste Baker, Fundraising Coordinator

M: 0415 486 052

E: celeste@mdqld.org.au

 

Penny Deavin, Communications Coordinator

M: 0457 058 159

E: pennyd@mdlqd.org.au

 

Muscular Dystrophy Queensland

1149 Sandgate Rd, Nundah Qld 4012

T: 07 3243 9700 F: 07 3123 9700