Australian Neuromuscular Disease registry - Muscular Dystrophy Queensland
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Australian Neuromuscular Disease registry

ANMDR

The registry aims to collect information about individuals diagnosed with neuromuscular conditions such as:

  • Duchenne Muscular Dystrophy (DMD)
  • Spinal Muscular Atrophy (SMA)
  • Facioscapulohumeral Muscular Dystrophy (FSHD)
  • Myotonic Dystrophy (DM)

Run by a leading research group and supported by clinicians around the country, they hope to better understand and treat neuromuscular diseases.

You can register your interest with them.