You’re The Voice

You're the Voice
You’re The Voice invites anyone in the neuromuscular community to contribute their stories, ideas, experiences and insights in a collection of videos and recordings giving encouragement, inspiration and hope.

We wanted to create a platform for regular people in the neuromuscular community to share their stories, ideas and conversations about all aspects of living life on their own terms. A place be real and talk about the triumphs as well as the struggles, the insights and the fails, big or small, and how you handled it all.

Your voice can inspire and empower others to live an awesome life. A place to find real stories and ideas on how to handle the hard stuff and try again, and how to create the great stuff in life.

As speaking and listening are often the best form of communication for people living with neuromuscular conditions, the stories and conversations in this collection are video and audio recordings.

The Collection

Watch the entire collection on YouTube, or listen to our podcast collection on SoundCloud


Doug Robins shares his success and challenges finding a place to live
Finding love and moving out – by Doug.
Watch YouTube
Listen to SoudCloud podcast


Raymond shares his story - If you don't try, you won't know
If you don’t try, you won’t know – from Raymond.
Watch YouTube
Listen to SoudCloud podcast


Steven Patrick
Steven’s story about adapting to change
Watch on YouTube


You're the Voice - Emma Weatherley
Emma discusses maintaining independence
Watch on YouTube


Add your story to the collection
Share your story with us.
Hints of creating a YouTube clip

Want to add your voice to the project! Here’s what to do …

It’s easy to join us and learn how to be a narrator

Contact our project leaders, Nhon & Doug, who can answer your questions and/or help you get started. Helene Frayne, is also available via email or by calling our office on freecall 1800 676 364.

Other Shared Knowledge

Check out Deb & Doug’s tip sheets for practical advice on doing life with a neuromuscular condition.

PTC LogoThis project has only been possible with the support of the PTC Therapeutics Strive for DMD Awards.