Our History, Mission, Vision and Values

In 1978, a group of families concerned about the lack of assistance for their children formed the Muscular Dystrophy Support Group.

Without clinical or public recognition of the disorders, the group began the challenging process of raising awareness, fundraising for equipment and services and supporting research that might one day find a cure.

Muscular Dystrophy Queensland has built on the dedicated efforts of these early volunteers towards a future where neuromuscular conditions no longer limit choice and control.

Our aim is to support our community members to make the most of opportunities and fulfil their potential to live the lives they choose.

Today, Muscular Dystrophy Queensland provides vital services and support for Queenslanders living with neuromuscular conditions and their families throughout every life stage. As well as NDIS plan management, support coordination and allied health services, Muscular Dystrophy Queensland provides free charitable support for people most in need, when they need it most.

Whilst we are fortunate to receive some government funding, often for limited timeframes and pilot programs, the ongoing viability and growth of our free charitable services – including our Infoline, advocacy program, social support programs, counselling program, equipment loans, extended care, and more – rely entirely on the generous support of donors and philanthropic partners.

Our History


1978	A group of families whose children had muscular dystrophy joined forces to raise awareness and funds. The first executive board of The Muscular Dystrophy Family Support Association of Queensland was appointed on 25 June.
1991	MDQ’s first Executive Director, Mr Peter Denham, is appointed. He leads the organisation until 2007.
1992	The organisation becomes incorporated as South East Queensland Muscular Dystrophy Assoc. Inc. and achieves charitable status under the Collections Act. Equipment loans, including electric beds, ventilators and wheelchairs, are made available to families, alongside counselling and support services.
1994	All Hallows’ School Year 11 students collect donations for Muscular Dystrophy Queensland on the streets of Brisbane for Red Bow Day, an annual tradition that continues more than 30 years later. Andrew, Greg and James Bell from Ray White Surfers Paradise host the inaugural Ball to raise funds for muscular dystrophy. The annual events have since raised over $4 million of dollars over the past 30 years.
1995	The Brisbane Harley Owners Group hosts their first charity ride, raising funds for people with muscular dystrophy. More than 30 years later, the annual ride remains a highlight on the MDQ calendar.
1999	The organisation relocates from Rocklea Markets to inner-city Wharf Street.
2017	MDQ becomes an Australian Public Company limited by guarantee in preparation for the introduction of the NDIS, enabling the organisation to provide chargeable services to clients whose supports are funded through the new scheme. Charitable services continue for those not eligible for NDIS funding.
2018	MDQ celebrates its 40th anniversary.
2019	With the rollout of the NDIS across Queensland, MDQ begins employing specialised allied health therapists to provide services to clients.
2025	MDQ employs a social worker to provide additional counselling and social work-led services for clients and families. MDQ hosts its inaugural Mothers’ Retreat on the Gold Coast, providing a supportive and relaxing weekend for mothers to have a break.

Read our Annual Reports

Our Board

Our Leadership & Staff

Life without limits for people with neuromuscular conditions.

OUR VISION

Life without limits for people with neuromuscular conditions.

OUR MISSION

Muscular Dystrophy Queensland empowers people living with muscular dystrophy and similar neuromuscular conditions to make the most of opportunities and live the lives they choose.

Our Values

KNOWLEDGE: We grow our knowledge: listening and adapting to meet the changing needs of our neuromuscular community. We amplify the voice of the neuromuscular community for their benefit and wellbeing.

SERVICE: We work with care, dedication and excellence to serve our neuromuscular community.

COMMUNITY: We are a diverse group: people living with neuromuscular conditions and those who support them. We value inclusion, connection, respect and shared experience.