Community Stories - Muscular Dystrophy Queensland

Community Stories

Community Stories

Meet some of our wonderful community members as they share their journey living with muscular dystrophy and similar conditions.


India’s amazing art

India Parker is a 23 year old self taught artist who specialises in fine art including fine line and stippling. Raised in Brisbane, Queensland, India was diagnosed with limb-girdle muscular dystrophy (LGMD). She gained her first art commission at the age of 14.


Tristram represents Australia

Tristram is a valued board member of Muscular Dystrophy Queensland. He is the Head of Community Engagement at Clickability, a disability service directory that helps match NDIS participants with providers. Tristram is also a keen powerchair football player, having represented both Queensland and Australia.


ABC Days Like These

Alyce Nelligan is used to being a trailblazer.  She hasn’t met a barrier she hasn’t been able to smash through.  Until now.

Born with minicore myopathy, a rare muscle disease, she was the first at her primary school in a wheelchair, and the first with a physical disability to graduate from her high school in Toowoomba, Queensland.

ABC Radio

Tracey shoots for target

Following a “come and try” weekend at Belmont Shooting Range, Tracey was introduced to rifle shooting and hasn’t looked back.

“I wanted to try drag racing but decided on shooting instead. If you get the opportunity to do something a little outside your comfort zone, just do it. Jump. Do it”.

Tracey Jackson 1 modified Muscular Dystrophy Queensland

Creativity takes courage

Anthony is a talented artist and author, creating his own unique range of beautiful artwork and children’s books.

Anthony learned at a young age that his physical limitations meant he’d have to work harder to achieve his goals.

Anthony 3 modified Muscular Dystrophy Queensland

The Politics of Pain, by Peter Slade

Read thoughts on equitable access to pain management from one of our community members.

Feel free to send any tips or stories into us at


Nina flies high

Nina, one of our community members shares her recent adventure in the Hunter Valley.

Feel free to send any tips or stories into us at

nina8a Muscular Dystrophy Queensland

ABC Health Report – Gene Therapy Advances

The U.S. Food and Drug Administration (FDA) have voted at their formal meeting at the end of May, that approval moves forward for a gene therapy for Duchenne muscular dystrophy. (8 min listen).

Host: Dr Norman Swan, Guest: Prof John Rasko, AO

abc health report Muscular Dystrophy Queensland

World Duchenne Awareness Day Documentary: Breaking Barriers.

This touching 30 minute documentary, directed by Nicoletta Madia, beautifully captures the journeys of people and their families across the globe who are breaking barriers in Duchenne.