Articles and Resources

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Info Hub

Muscular Dystrophy Queensland believes that having access to current and accurate information is essential for finding the right support for you or your loved one.

On this page you’ll find a range of resources for people living with neuromuscular conditions including practical guidance on managing daily life, disability related supports, allied health services and community programs.

Our goal is to help you make informed decisions, access the right services and stay connected to the support you need.

Living well with neuromuscular conditions

Browse articles developed by MDQ's allied health team and other qualified health professionals, covering a range of topics to help you manage your neuromuscular condition, maintain your wellbeing and live life to the fullest.

March 26, 2026

The Essential Role of Self-Care for Carers – Article

Caring for someone with a neuromuscular condition can be rewarding, but it can also be physically, emotionally and mentally demanding. This article explores why self-care is essential for carers, common barriers such as guilt and time pressures, and the impact of stress and burnout. It outlines practical, achievable self-care strategies across physical, emotional and social wellbeing, and emphasises the importance of recognising your own needs, seeking support and building a personalised approach to maintain resilience, wellbeing and capacity to care.

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March 10, 2026

Pain Management in Neuromuscular Conditions – Article

Pain is common in people living with muscular dystrophy and other neuromuscular conditions. This article explains the causes and types of pain, contributing factors, and evidence-based management strategies, including physiotherapy, lifestyle adjustments, psychological therapy, and medications. It also highlights the importance of assessment, individualised treatment, and a multidisciplinary approach to improve comfort, function, and quality of life.

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January 21, 2026

Help with CPAP and Bilevel Therapy – Article

CPAP and Bilevel therapy are commonly used to support breathing during sleep for people living with muscular dystrophy and other neuromuscular conditions. This article explains how these therapies work, common challenges people may experience, the importance of mask fit and comfort, and how ongoing support and review can help make treatment more effective and sustainable over time.

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January 8, 2026

Sleep and Sleep-Disordered Breathing in Muscular Dystrophy – Article

Sleep and sleep-disordered breathing are common in people living with muscular dystrophy. This article explains why sleep is so important, the types of sleep disorders seen in muscular dystrophy including sleep apnoea and hypoventilation, how these conditions are diagnosed and the role of treatments such as CPAP and BiPAP.

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January 8, 2026

Treatment for Sleep-Disordered Breathing in Muscular Dystrophy – Article

Sleep-disordered breathing affects many people living with muscular dystrophy. Treaments such as CPAP and Bilevel therapy help support breathing, while masks or chinstraps improve comfort and effectiveness. Regular review and personalised adjustments ensure treatment works best for each individual. Read the article to learn more.

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December 5, 2025

Respiratory Management in Neuromuscular Conditions – Article

Respiratory complications are common in neuromuscular conditions. Weak breathing and airway muscles can cause ineffective coughing and difficulty clearing secretions. Regular assessment, physiotherapy, cough assist devices and non-invasive ventilation help reduce risks. Muscular Dystrophy Queensland’s equipment loan program provides access to essential respiratory aids when needed.