Myotonic dystrophy - Muscular Dystrophy Queensland

Myotonic dystrophy (DM) and congenital myotonic dystrophy (CDM)

Myotonic dystrophy (DM), also known as Steinert’s disease, is the most common form of adult muscular dystrophy.

A key attribute of DM is myotonia, difficulty relaxing a tightened muscle after use.

The disease is caused by abnormal expansions of repeated areas of genes which may increase with each generation leading to earlier onset, and increased severity of symptoms in succeeding generations.


Types of Myotonic Dystrophy


Type 1 DM (DM1)

  • Congenital-onset DM1
  • Childhood or juvenile-onset DM1
  • Adult-onset (classic) DM1
  • Mild DM1


Type 2 DM (DM2)


We are here to support you

Medical Alert Cards

Medical Alert Cards

Muscular Dystrophy Queensland has created condition-specific alert cards for the most diagnosed muscle-wasting conditions.

These cards mean that people living with muscle wasting conditions and their families will have the security of knowing they can easily inform emergency health care professionals of the vital and specific issues that affect children and adults with these conditions.

Order our Medical Alert Card for Myotonic dystrophy type 1 and type 2 today

Community Members

Become a Community Member

By becoming a registered Community Member of Muscular Dystrophy Queensland you will be able to gain access to relevant supports.

At Muscular Dystrophy Queensland we don’t see you as just a client. You are a valued member of our community. We’re here to support you through every stage of life. We’d like to keep in touch with you, to understand your needs as they evolve and provide you with ongoing access to our range of services. And so, we ask you to register with us. 

Useful Resources