Meet Sarah Shaw, Community Liaison Group Chair - Muscular Dystrophy Queensland

Meet Sarah Shaw, Community Liaison Group Chair

As the new Chair of the Community Liaison Group (CLG), I am reaching out to introduce myself.

I live with my wife Lou in Carseldine and one aggressively affectionate Cavoodle named Friday.

I have been a member of the Muscular Dystrophy Queensland community since 2014 and assisted with The Loop project and client testing of the new website. As well as some grant applications.

In 2008 I had a sore neck and since then have been living with an aggressive muscle wasting condition and have seen my world radically change.

I’ve gone from being fully independent and managing large teams of people in my work environment to having high support needs and managing a team of people in my own home.

Meet Sarah Muscular Dystrophy Queensland

I retired from the Australian public service in 2016 and now spend my time beta reading for authors, volunteering for a literary society and undertaking writing courses.

My wife and I love live music, theatre and go as often as we can.

sarah and louise approved edited scaled Muscular Dystrophy Queensland

CLG Chair

The key function of the Chair’s role is to ensure we have a diversity of voices and feedback for the board to consider.  Muscular Dystrophy Queensland represents a disparate range of clients in every sense, gender, age, socio-economic, stage in life, ethnicity, sexuality, carers, and people at different points in time of living with their condition. Added to this, our members are geographically dispersed.

We need to ensure therefore we have a diverse range of voices to be able to provide valuable feedback to the Board. My role is to ensure every CLG member has an opportunity to be heard in that process.

Your Invitation

One of the key priorities for the CLG has been about providing members of the community with meaningful ways to connect and be heard.

Muscular Dystrophy Queensland’s Peer Support is a private group open to members of our community. Run by members of the community for members of the community we hope it grows into a virtual space where the community can go to feel less isolated . You can find us on Facebook, search for MDQ Peer Support.

The Committee is also hosting a virtual coffee and catchup hour on the 22nd October for people to spend time with each other. I hope to meet many of you there.

You can find out more about our Community Liaison Group here.